Huntington's Disease and its ethics

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Huntington’s Disease and its ethics By Henri Robben In “Genetics and Reproductive Risk: Can having children be immoral,” L.M Purdy discusses the notion that the recent advances in reproductive technology impose a moral obligation on individuals to prevent the birth of “affected” babies that will not have a “minimally satisfying life.”  There are, however, several assumptions that the author makes in reaching the conclusion that having “affected” children is immoral. The author makes the claim that people with Huntington’s disease are unlikely to live a minimally satisfying life. It is known however, that Huntington’s disease does not take any affect until 40-50 years of age. Thus, those 40-50 years can easily be lived the same, without the affects of the disease, as those individuals who are not affected with Huntington’s disease. Just as those without the disease have a satisfying life before the age
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of 50 so can those with Huntington’s. Thus, there whole life is not doomed to be unsatisfying. If questioned, many individuals would chose only 40-50 of a “good, disease free” life than no life at all. When the author states that is unacceptable to accept the risk of inheriting this disease with the consent of the future child,  the author fails to recognize that essentially all actions performed by the surrogate mother are done without consent. This includes drinking alcohol and smoking. While these behaviors are harmful in large amounts, they are not monitored by a third party nor have ...

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