John Kennedy The Boy whose skin fell off.

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John Kennedy “The Boy whose skin fell off”

The program was a documentary of John Kennedy’s last four months of life. John Kennedy was a guy who suffered from dystrophic epidermolosis bulsoa which is a disease where big lumps of your skin fall off. So when he found out he was going to die, he just wanted to show everyone the last few months of his life and to help raise money for his charity. When I first heard what we were going to watch, it made me slightly uneasy, but seeing how Jonny coped with his disease amazed me and showed me if he can cope with his disease anybody can cope with anything. A documentary is something that I don’t often watch but I was very happy I had seen it.

In the opening sequence the first images shown of him are of when he was dead. This scared me a bit because this is the first time I have ever seen anybody dead. When I first saw the pictures of him I just did not know how he had coped for thirty six years. The film showed you the last four months of his life. In the fourth month it showed him going to order his coffin, in the third month it showed him meeting a celebrity. In the last month it showed him having final a house party where he could say goodbye to everyone and in the last few days it showed him going to 10 Downing Street, just before he died.

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Jonny suffered from dystrophic epidermolsis bulsoa as I mentioned earlier. This disease causes the loss of skin. This was something that caused Jonny much pain but he just got on with it and tried to act as normally as possible. I think the most difficult thing for Jonny must have been meeting people; it must have been something he found extremely hard. If I had to look after somebody in that situation there is no way I could cope, it would just wreck my life and get me so depressed.

     

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