My Role ModelMy late friend Rita snapped her spine in an auto accident when she was eighteen, about to graduate

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My Role Model

My late friend Rita snapped her spine in an auto accident when she was eighteen, about to graduate from high school. Her graduation present was intended to be a trip to Hawaii with her younger sister. Instead, she spent the summer and most of another year after high school in hospitals and rehab centers learning to become a quadriplegic. When she finally got home the first thing she asked her parents was, "When can I go to Hawaii?" A few months later her sister wheeled her onto an airplane and they were off. The extended family was no doubt consumed by anxiety as they watched Rita's plane take off. The trip, they were sure, would be a disaster. As it happened, nothing in Rita's life after the accident was a disaster. Her quadriplegia eventually killed her, in her early forties, and she spent whole years of her life after the accident in hospitals. Rita didn't deny the importance of all she went through. She professed without hesitation that her quadriplegia was a "distinguishing part" of who she was (and who she was becoming).

Rita was one of the most quick-witted and completely alive human beings I have known. Ostracized by her disability from the society she had belonged to, she set about "collecting" the subjects of her own society, and I was honored to become one of those subjects. For seven years Rita and I spent a few hours virtually every Sunday together—I helped her nurse move her from her bed to the bathtub for her weekly bath. I'll never forget Rita's report to me on having found the "perfect job"...

"It's terrific," Rita said. "I'm going to be a hearings officer for social security cases in Jefferson County. Just imagine! These malcontents are going for their day in court, trying to Weasel as many bucks as they can from the public coffers because their back aches or their arches are broke or the steel plate in their skulls makes their vision fuzzy. They're going to be standing there in court waiting to plead their case, drooling in advance over the monthly checks, and then in rolls me, in my wheelchair. These malcontents are going to go, Oh shit! How can I expect sympathy from that poor woman?"

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God knows how many welfare dollars Rita saved the County of Jefferson.

Rita passed from her society's lives before I became a psoriatic and that was my misfortune. I'm sure it took me longer to come to terms with my psoriasis than it would have if Rita had been around to mock me. I can just imagine her, sitting across her kitchen table from me, sipping brandy and swaddled in one of her luxurious Afghans, saying, "Geez you're lucky, Ed. I can barely remember what it feels like to itch. And to think, you can just reach down with your ...

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