This behaviour could also be linked to Katy being in denial, as she has previously been educated by the diabetic nurse on diabetic control and possible consequences of non adherence to treatment. Denial is a form of repression, when people will block out thought and memories which are stressful. (Fairburn, 2006). It can be used short term as an effective coping tool but Vile (2004) states that is used for a prolonged period it could be a barrier towards effective learning, self-care and management of diabetes. Kubler-Ross (1969) found that denial is also know to be a stage in grief; and is a recurrent feeling in patients presented with a new diagnosis (Buckman, 1992) and is often associated with the same stage in the ‘grieving process’ (Damianakis & Marziali, 2012) Katy is emoting a sense of loss for her former self, where things may have seemed easier and she did not feel ‘different’. Shneidman (1980) would argue that denial is a form of defence; the omission that you have a chronic illness. Katy often spoke of how she felt ‘ok’ and if something happened to her it would be then that she would deal with the repercussions.
Another factor that could affect Katy is her age. Lewin et al (2005) carried out research to further examine adherence of diabetes directed at children, adolescents and their parents. It found that adolescents are less adherent to their diabetes regime than younger children, and patients in adolescence will desire to be more autonomous and make their own decisions not only in their personal life but health care decisions aswell. It is regarded that adolescence is a time where individuals who are regarded as ‘healthy’ are going to act in a way that could compromise their health and take part in experimentation (Tercyak , 2005), for the adolescent who has diabetes they are more likely to do this as a way of coping (Millstein & Igra, 1995).
Decisions made by adolescence will differ from those of an adult; their values will differ on the possible consequences. Esmond (2000) specified that adolescence is a ‘time of discoveries and exploration of potentially negative health behaviour.’ Research has established that the period of adolescence is related to the disregard of insulin regime, dietary advice and self monitoring of blood glucose levels (Guo et al 2011). This will be advocated by Skinner et al (2000) who had previously found over a year of monitoring adolescents, found a determination of self-management over time.
Sociology involves studying people and how they relate with each other, and how society can affect certain behaviour and attitudes held by an individual.
Merriam & Webster (2012) define sociology as:
‘the science of society, social institution and social relationships;
specifically: the systematic study of the development, structure interaction,
and collective behaviour of organised groups of human beings’
This definition lets us think how humans are sociable beings and certain groups will come together, whether it is through same interests, age or family (Crawford & Brown, 1999). Groups that form will tend to have similar interest and status and will develop their own ‘norms’ within the group; what is acceptable (Haborn, 2002).
The close network of friends Katy has made over the years has influenced her on important decisions she has made regarding her diabetes one of the reasons for this is the stigma attached to people who have diabetes. Goffman (1963) states that ‘stigma can be seen as an attribute that discredits the individual, denying full social acceptance, and where notions of social inclusion and exclusion are firmly brought to the fore.’ Being referred to as a ‘disease’ may have caused Katy to not want to disclose with her friends that she has diabetes as a result of not having enough education on the diabetes they may distance themselves with Katy. Katy also stated that she would often omit her insulin when she was with her friends as she ‘felt uncomfortable’ doing it around them. Research carried out by Shui looking at the perceptions of stigma from people with diabetes would agree with Katy’s feelings as it found a ‘negative’ reaction from the public, and would often receive ‘strange’ looks whilst administering insulin, thus leading to feeling ashamed or even omitting or delaying their blood glucose checks and insulin. She will also not want to appear to deviate from her peers (Esmond, 2000). Although (Mulvaney, 2011) would argue that there is a misconception regarding diabetes and stigma and that socially in western civilisation we have now developed and become more aware and have developed a more willingness to accept and provide support for people who have diabetes.
Because Katy is reluctant to disclose that she has diabetes with her friends, she may be missing out on invaluable social support. Lack of social support has often been linked to poor management of their health, conflicts occurring to then make the changes to improve health and not even asking for help (Paterson& Brewer, 2009). One study by Periera et al (2008) where one hundred and fifty six patients filled out questionnaires related to ‘adherence, quality of life and family functioning’, it found that social support had a strong effect on adherence in females and that the dynamics of the family should always be taken into consideration. Although Ref would argue that not all social support can have the positive influence expected as, if family or friends were to be ‘over encouraging’ putting pressure on the patient with regards to their health and behaviour it will have a negative effective and could lead to an unwillingness to manage their diabetes well or totally disregard it. Although the study asked Canadian patients it could be closely related to patients in the United Kingdom. It has also been suggested that parents themselves find it hard to pass on the control of their children’s lives through adolescence and will often put pressure on their children if they do not make the decisions that they themselves would make (Dashiff, 2011.
Machado (2008) found that nuclear families and availability of parents to provide the social support is the key to psychologically promote positive adherence with diabetes relating to this
Katy’s mum although would put her children first did not have time to consider her own condition, and although tried to help Katy as much as possible, was working fulltime hours and stated she found it hard to find the time to encourage and educate Katy and would often rely on practitioners to provide the support for Katy if she needed it.
The Health belief model allows for the practitioner to understand and possibly predict what sort of choices Katy is going to make regarding her health care. Because Katy is showing signs of denial of having diabetes, she is also showing she is lacking the knowledge to make the best choices to promote her health. We must first ensure that Katy knows the possible consequences of her actions allowing for her to make the most effective decisions. Although Katy had been given the relevant device and support from the diabetic nurse, it may be a possibility that the initial diagnosis may have stopped her from understanding the information that had been given; more education may be appropriate or a different form of communication. Numerous studies (Heinrich at al, 2009; Arora et al, 2012; Hanauer, 2009; Fischer et al 2012) have found that using developing technology like web based support and education groups, mobile health intervention; text reminders, you can improve the compliance of treatment and management of diabetes – possibly due to its anonymousness; patient may feel more at ease talking about their problems like this.
Research found showed that there seems to be a belief of patients that there will be stigma with the disease, which could be linked to the lack of support Katy may have had as she wished not to disclose this personal information about herself. More education for both Katy and her friends could vastly improve as research showed that more now than people are more informed about diabetes and would be willing to support and aid the people who have it.
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